International Patient Organization for Primary Immunodeficiency's

The decision to create the International Patient Organisation for ...

The decision to create the International Patient Organisation for Primary Immunodeficiencies (IPOPI) emanates from an interim organising committee that met in Oxford, UK, in 1990. Two years later, IPOPI was formally established in Lugano, Switzerland. The small group of representatives from the primary immunodeficiency community (PID) who met in 1990 identified the need to start an organisation that provides international representation and support to national PID patient groups around the world. IPOPI’s mission is to improve awareness and access to early diagnosis and optimal treatments for PID patients worldwide.

IPOPI

Foundation for Primary Immune Deficiency Diseases

The mission of the Foundation for Primary Immune Deficiency Diseases is to support education ...

The mission of the Foundation for Primary Immune Deficiency Diseases is to support education about, diagnosis and treatment of, and research into primary immunodeficiency diseases in India and the USA. 

Immune Deficiency Foundation

The Immune Deficiency Foundation is a national patient organisation dedicated to improving ...

The Immune Deficiency Foundation is a national patient organisation dedicated to improving the diagnosis, treatment and quality of life of people with primary immunodeficiency diseases through advocacy, education and research.

Jeffrey Modell Foundation

The Jeffrey Modell Foundation was established in memory of its namesake, who died of ...

The Jeffrey Modell Foundation was established in memory of its namesake, who died of pneumonia at the age of 15 due to an underlying primary immunodeficiency disease (PID). The Foundation is dedicated to early and precise diagnosis, meaningful treatments, and ultimately cures for the ever-increasing number of known PIDs. The Foundation works for clinical and basic research to better understand and treat PIDs; serves as a national and international information and education resource regarding the diagnosis and treatment of genetic immunodeficiency; advocates on behalf of patients and families to ensure their access to comprehensive care; and promotes public awareness of PIDs.

Save One Life

Save One Life was founded in 2000. It supports people with bleeding disorders living in ...

Save One Life was founded in 2000. It supports people with bleeding disorders living in developing countries to live independent and productive lives by having vital access to medical and economic resources. 

Hemophilia Federation of America

Hemophilia Federation of America, Inc. (HFA) is a patient education, services and advocacy ...

Hemophilia Federation of America, Inc. (HFA) is a patient education, services and advocacy organisation serving the rare bleeding disorders community. HFA is exclusively focused on the bleeding disorders patient and caregiver community.Based in Washington, D.C., HFA works in conjunction with other national and state organisations on behalf of families living with bleeding disorders.  

National Hemophilia Foundation

The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and ...

The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, NHF has chapters throughout the USA. Its programmes and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention. 

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Octapharma takes an active role in our community

Octapharma takes an active role in the communities in which people rely on us for their medicines. 

Patient engagement 

Octapharma takes an active role within the communities of people who rely on us for their medicines. We sponsor and support organizations worldwide.

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